26 October

Best Smile At Bingo Night

by Jon Katz
Best Smile At Bingo Night

We awarded Jean the “Best Smile At Bingo Night” at the Mansion tonight, Friday is the night Maria and I call the Bingo Games. Lots of winners. I brought some new prizes – stuffed animals, large print novels, some crossword puzzles (Madeline loves crossword puzzles and word games).

When I first came to the Mansion, I would often find Jean vacuuming the floors and hallways, even though the staff had just vacuumed them. She told me she loves to do housework, and has loved it all of her life.

After Bingo – she won two games – she stopped to make sure all of the chairs were pushed forward and in their right place. Jean has a very warm and radiant smile.

17 October

At The Mansion: Talking About Loneliness

by Jon Katz

I went to the Mansion Tuesday afternoon to bring Ruth her new fuzzy bathrobe (I received two nightgowns for her today). She was sitting with Madeline, who was reading, and she and Ruth invited me to sit down and talk. I was happy to do that.

Ruth thanked me again an again, she said she wouldn’t have any winter clothes if it wasn’t for me (and the Army Of Good.) Joan joined us.

Sometimes, the Mansion residents ask me exactly who the Army Of Good are, and they are amazed when I tell them I really don’t know, I have only met a very small number of them, most live far away.

Ruth said she was sad, her “hubby” Ken died a few weeks ago. I’m not sure who brought up the subject of loneliness, I think it was Madeline, who grew up in a Bronx orphanage and has spent some time in institutions in recent years.

Madeline ishe is in her 90’s and is most often found doing New York Times Crossword Puzzles. She is often alone.

“We get used to loneliness here,” Madeline said, “this is a great place to live, and they take great care of us. But most of us don’t get many visitors. Some of us don’t have families living anymore, mostly, we have lost our spouses and sometimes, our kids live far away or don’t have time to visit.”

She said she dealt with loneliness by finding her own things to do. “You have to be able to be okay by yourself,” she said. Ruth was in a different place, she said she was lonely because of Ken.

And because her friend, her “Ma,” Peggie, had gone off to Cuba. Joan,  who was struggling to follow the conversation, said she missed her husband.

It’s an irony of assisted care, the residents are surrounded by other people, but Madeline said the people that she had shared her life with were rarely there, or never there. It’s the kind  of loneliness, she said, that activities can’t make go away.

There is a sense of community at the Mansion, the residents do look out for one another.

There is also an inevitable and perhaps unavoidable sense of loneliness that comes from being on the edge of life, and leaving so many of the things you love behind.

In a sense, the residents are helpless, and quite alone at this point in their lives. I feel very much at home when I am with them, perhaps it is because there is a loneliness  in me as well, I connect with it.

We had the nicest talk, the four of us, each in our own place, each with our own emotions. Yet there was a connection between all of us as we sat and talked, an openness and a comfort.

If  felt special to me, and I hope, to them.

Note: Some good people are sending used clothes and books and personal items to me or to the house without talking to me first. I’d appreciate it if you didn’t. In general, I prefer to buy the residents new clothes because of their durability or color, and there are many sizing and safety and medical issues relating to their clothing.  If not, I can go to local thrift stores and measure things and check their condition.

Most of the used things people have sent are not relevant to the resident’s needs.

Also, we have plenty of books for them to read now, and the residents who wish to go out in the winter (a small number of them) have what they need. I am reluctant to give  them  used things, most of them don’t fit or need some work, others don’t meet medical and health requirements  and have to be  given away.

Last week, a huge box of used books, including coloring books already drawn on with many torn pages came. I can’t bring things like that to the Mansion, and don’t want to, I know the sender meant well. Another person send me photos of her attic stuffed with boxes of clothes and said she was willing to ship all of them to the Mansion.

That is not the kind of thing we can use, I do appreciate the thought.

If we do need something, I will ask for it, and thanks so much for  caring. If you have any questions about sending something, new or used, it would be better if you contacted me at [email protected].

I’ll give you an honest answer. Thanks.

 

2 October

A Comfort Doll For The Mansion

by Jon Katz
Comfort Doll For The Mansion

Kathy Wilhelm, a blog reader who works for the Ashton-Drake Galleries, has worked on a project dear to heart , a doll for memory care patients. She sent me Ashton-Drake’s newest baby doll, Kayla, the comfort doll, “I hope this baby doll can bring joy to one of the residents at the mansion.

She also offered to send some diaper bag items used to help care for the baby.

I did this once at the Mansion, we purchased a doll for Diane, and that has been a wonderful success, Diane sleeps with her doll, she changes her diapers, worries about her, loves and holds her.

It has calmed her and given her focus.

Kathy donated the Kayla doll, she wouldn’t take any payment, or set any conditions.

She asked only for some perspective on how the Mansion resident might react. Tomorrow, I’m bringing the Kayla doll over to the Mansion, and I’ll have  a meeting with the staff to talk about which resident would benefit most from this generous gift.

If this works out, Ashton-Drake might send another one. That would be great.

I studied the use of dolls for some months before I got one for the Mansion, there is some controversy about them – this is America, after all –  some doctors feel they infanticize dementia patients.

it is used mostly with memory patients, especially those with dementia.

I haven’t seen any evidence of that at all. These patients are not  getting younger, they are getting older. Could it hurt for them to feel younger? Do they need to be more mature? I remember Madeline, a Mansion resident in her 90’s telling me once “any more mature is the grave!”

It was a great line, but there was some truthful sting to it.

When I see the doll being used, I see how it calms people, eases their confusion, gives them a purpose, and calls up some of the best and most loving parts of their memory. It gives them something important to do, a way of feeling needed and useful.

I believe in them, and I have to say that this doll, the Kayla doll, is one of the best and most life-like that I have seen. The face and the eyes are extraordinary. I have a resident in mind for this doll, if I get permission, I’ll let  you know.

It is a curious thing to bring a baby doll to some women in their 80’s – the men don’t want one. But it is a beautiful thing. In some way, it brings their lives back to one of the most loving and essential times. There is not much else that can do that.

The comfort doll was not a gift I would ever have thought of bringing, yet I’m eager to see the joyous face of the resident who receives it. I’ve seen that look before.

I’ll let you know what happens.

28 September

Mansion Friends: Sometimes She Cries

by Jon Katz
Sometimes She Cries

Joan is one of the most cheerful and sunny people I meet at the Mansion, but sometimes I find her crying. Tonight, Susan Popper, a Mansion volunteer and a friend who helps us run the Friday night Bingo Games, came in early and found Joan sitting crying on a bench.

Joan’s memories sometimes bubble up, and like all of the residents, she is sometimes achingly aware of who she has lost – a daughter, a husband, a mother and father – and most of the memories of her life.

This is frustrating beyond imagination, she tries so hard to put the pieces together, and remembers some things so clearly, like the death of her husband, he collapsed right in front of her.

When this happens, we hug her, walk with  her, hold her, tell her stories, ask her about her memories. She comes out of it quickly, but I know that the residents are rich in memories, and even richer in loss and things left behind.

Sometimes, it is necessary to mourn. When this happens, I not try to cheer them  up, I just try to listen. I can’t replace their losses or heal their wounds, I can only listen and be grateful for being trusted.

Susan and Joan have  become friends. Joan knows the people who care about her, even if she will never know their names. It was a gift to see the two of them laughing and smiling and yakking on the bench as we came into the Mansion.

This means so much to Joan, and to the other  residents. Even those with memories feel forgotten.

You can write to the Mansion residents at this address: 11 S. Union Avenue, Cambridge, N.Y., 12816. I should explain that many of the residents cannot replay to your letters for various reasons, and if the get sick or even die, I am not permitted to tell you about it, due to privacy laws, unless they give me explicit permission.

Here is a list of Mansion residents who have asked to receive their letters. Letters are a joy to them, a reminder that they have not been forgotten by the other world. The list changes week to week for many reasons. I wouldn’t read much into that.

And thanks for writing them, it means more than you might imagine.

Winnie, Ellen, Matt, Mar, Sylvie, Diane, Alice, Jean, Madeline, Joan, Allan, Bill, Blanche, Helen, Peggie, Dottie, Tim, Jackie, Guerda, Brenda, Ruth. Kenneth is no longer on the list.

19 September

Army Of Good! Tell The Mansion Residents About Your Town

by Jon Katz
Your Town

Mansion Activities Director Julie Smith had a great idea for a new activity for the residents that directly involves the Army Of Good, who live in every part of America and much of the Western World.

And it’s free.

I just had a thought,” she wrote, “it would be great fun for the residents if you asked people from the blog to send a little note with information about the town or area they live in. I thought I would start a new activity where we would add their town on a map of the United States and talk about it.”

I posted this yesterday and Julie immediately got a bunch of e-mails with short descriptions of different towns and some local photo. Julie’s e-mail is [email protected]. She is forever looking for new and interesting activities for the residents.

You can e-mail her a short description of your town and send a photo of  you wish (optional) or mail you comments – two or three paragraphs —   to the Mansion if you prefer, c/o Julie, The Town Project, 11 S. Union Avenue, Cambridge, N.Y., 12816.

I love this project. For one thing, it is free. For another, it is simple. And I can picture the wonderful map Julie plans make out of your messages and photos. This could be a living and continuous project that connects people of good heart with people of great need.

This kind of project is more important than it might seem.

The residents often tell me they feel abandoned and forgotten – no longer true, thanks to the Army Of Good, and they love being noticed and spoken to and remembered. They are also intensely curious about the outside world.

Many of the residents grew up in rural upstate New York and have little experience with the world beyond.

They are fascinated by your letters and messages, so if you can take a minute or so to write a few paragraphs about your town and e-mail or mail it to Julie, that would make a big difference and do a lot of good.

The residents also love our Pen Pal program, some can’t respond to your letters, but everyone I talk to loves getting them. They answer when they can.

If you wish to write to the Mansion residents,  here is a current list of residents who wish to receive your messages. You can send them to The Mansion, 11 S. Union Avenue, Cambridge, N.Y., 12816.

I can’t give out full names, nor am I permitted to update you on their medical or emotional conditions unless they give me specific permission and I clear it with the staff.

Here they are: Winnie, Ellen, Matt, Gary, Gerry, Sylvie, Diane, Alice, Jean, Madeline, Joan, Allan, Bill, Blanche, Helen, Alanna, Peggie, Dottie, Tim, Art, Jackie, Brenda, Wayne, Kenneth, Ruth.

And thanks.

Bedlam Farm